Late Night Inspiration

It is 3:58 am and I have yet to sleep. Again. This is a regular occurrence with me. I either don't sleep or I sleep all the time. I am living with CRPS. I try not to think of it as "I suffer from CRPS", I try and be positive. But on nights like these it is very hard. I sit here waiting for my Pain Management doctor office to open so I can tell them what happened over the weekend. Again. This is the second Monday in a row where I have to call them and talk about what is happening.

CRPS stands for Complex Regional Pain Syndrome. It is rated higher on the McGill pain scale than cancer and amputation. It causes temperature changes, swelling, color changes, muscle spasms, atrophy and lots of other things. I could write a whole post on the muscle spasms alone, especially after the past 24 hrs.

My CRPS is in my right foot, leg, hip, lower back and I have shown symptoms in my right arm also. It started in my ankle only. I will get more into my history in another post. When I have had more sleep and can think a little clearer.

Last weekend I was walking up the porch steps and my bad leg gave out and down I went. It happened again in a bookstore the next day. Doctor put me on steroids thinking I had some inflammation on the nerves and it was causing the weakness. They didn't help the pain but I didn't fall all week so that was good. Yesterday, my first day without steroids I had spasms from to to hip woke me up. Screaming and crying was all I could do until they calmed down. Just when I got the spasm to the point I could breathe a sign of relief my foot would draw down and they started again. I had to keep something blocking my foot so it couldn't draw down and spasm again. I managed to get up out of bed but my leg doesn't work right and there is a disconnect between my brain and my leg. I had plans to work in my office and those plans changed to taking 3 muscle relaxers and 2 pain pills and sitting here crying while I waited for them to work. Eventually they helped and I went from crying to trying to sleep a little.

I got a new laptop and its small enough I can work from bed with it. I am running out of things to keep my mind busy and there are so many times I want to ramble about random things in my head so why not put my new laptop to more use and do a little blogging. Then I remembered I started one a while ago when I was diagnosed with CRPS and I never did anything with it. I decided to try again, I am not good with words and I tend to forget things so we will see how this blogging business goes.

Do you live with chronic pain or illness? Shoot me a message so we can connect I love connecting with fellow spoonies . :)

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